Kaelyn is home, and we are off to Disney!

Hi everyone!

We were able to take Kaelyn home yesterday. She is doing fine. She does have a bag on again for her bile to drain externally, but she is feeling much better. We are going in for an ultrasound tomorrow to see what is going on with her bile ducts.

We are going to Disneyland next week! We leave on Monday! We are all very excited, especially Jacob. I will make sure and take a lot of pictures and then I will post them here for you to see.

Love to you all!

Angie

Well, we were able to take Kaelyn home on Saturday. She absolutely loved being home. She ran around and played with everything and everyone! But, unfortunately, on Sunday she was having some pain and swelling on her right side. So, we took her to the ER and they admitted us. Atleast we were able to have 24 hours of fun at home. My parents were visiting from Utah over the weekend, so it was nice for them to be able to see her out of the hospital, even though it was for a short time.

They are going to let us go home today though. Which was a suprise to me! I am very excited. They think that her pain and swelling was from her biliary drain backing up some. We have it clamped so it was exclusively draining internally. But now we have a bag on again so it will drain both internally and externally. It has seemed to solve the problem for now. We are going to try and clamp it off again on Sunday and then come in on Monday for a clinic visit with the transplant docs. I am sure we will discuss a more permanent option at that time. We may have to place another stendt. But we will see.

We are still trying to plan our Disney trip for the first week in April. We had to hold off on getting tickets becuase they wouldn't insure our trip while Kaelyn was in the hospital, so hopefully today we will be able to book our trip!

We love you all!

Angie