Sorry it has been so long between posts! It has been a crazy month. We rode another "rollercoaster" in the past few weeks. Kaelyn's tonsils have been huge and this is the first sign of PTLD (Post-Transplant Lymphoproliferative Disorder) AKA - cancer in the lymph system that people can get after transplants due to lowered immune systems. She also has been catching so many colds, and has had tummy pain for quite some time, which happens to be other symptoms of PTLD. So we had her labs checked for EBV (Epstein Barr Virus) which is the main cause of PTLD in transplant kids. 95% of PTLD cases are caused by EBV, which in a healthy no transplant person can cause Mononucleosis. Also most people have the dormant EBV in there body already. Anyway, her test was negetive for EBV, thank goodness. We are considering have her tonsils removed. Tonsils are just a factory and storage facility for bacteria. They are so huge that she snores at night and does complain that it is hard to swallow. One more surgery to add to the pile. But I will take tonsilitits to cancer any day!!!
Besides all of this craziness... we really had a wonderful Christmas. The kids had so much fun! I think it is more fun for me to watch them now that they are older! They are so excited! We also drove to WA on Christmas day to be with family there for about a week. That was great to go back to visit with all of the cousins and family. I also go to visit some really wonderful friends that I miss dearly. That was good for my heart.
Kaelyn and Jacob got to go iceskating and swimming while we were there. That was really a hoot! Jacob loved iceskating, or ice falling in his experience! He would look like he was trying to run on the ice! Run, run, run, fall....slide.....laugh and back up again! Kaelyn only went around the rink a few times, but she really had a blast with her cousins. She more enjoyed the swimming. It was her first time in a pool post tube removal! She was our Little Mermaid, it was wonderful!
The only downer to the whole trip was when we lost our luggage on the freeway! Boy was that exciting. We had a luggage rack thing on the top of Wade's parents car. It was really windy in Snoqualmie pass and the next thing we knew our luggage had freed itself and went rolling on the freeway, run over a couple of times and exploded. Wade's parents clothes were pretty much destroyed. Luckily mine and Wades were in a heavy duty suitcase and were okay. We lost a few things, including Jacobs precious collection of WII games. I think that was the biggest fatality. He just about cried when we told him, and honestly so did I (that's a lot of $$ spread out on I-90) But Nintendo has a really good replacement deal. If you send them the broken disks they will sell you a new one for half price. So we were able to get atleast a few back for him. One of the games was what he had just gotten for Christmas...but we should be getting the replacement soon. Luckily the WII console and all of the kids clothes and toys were in the cab of the car with us instead of the lugguge rack. Anyway...life goes on, and WII will be fine! ;)
I must write some of the thankfulness I have in my heart for the many blessings that we have received. I think I would be have broken down with out my faith in our Savior and in a loving Heavenly Father. I know they have carried me through the most difficult moments of this journey. Kaelyn has been carried in the arms of our Savior through most of her little life. This I am most greatful for.
I know that He lives and loves us individually.
Love to you all...
Angie
