Kaelyn is doing very well right now. It is great to see her feeling good and gaining weight! She has a transplant appointment on Monday and and oncology appointment on Wednesday, so I will try and give you an update after we hear what her docs have to say.
Love,
Angie
Saturday, July 23, 2005
Monday, July 18, 2005
No more chemo for now!
To update you all from the last post: Kaelyn ended up not needing the drain change. It started draining again all on its own. They let her go home on IV antibiotics (another nursing skill I get to learn!). The doctors cultured her bile and found some bugs in there they wanted to kill off, nothing abnormal. I think they are just trying something new to see if it will work. So far so good. She really has been feeling pretty good in the last week or so.
Some more good news. Kaelyn has finished her protocol of chemo and we have decided not to start another 12 week course. We are going to see what her AFP does in the next month or two. So, she gets a much needed break! Yeah! If her AFP starts to rise again we will put her back on her treatment, but if not we will have a huge celebration! Wade and I are trying to make the decision whether or not to have the dead tumors removed from her lungs. A chest surgery is really hard on Kaelyn. Her surgeon wants to do the surgery, but her oncologist doesn't think it would be worth the risk. So we are trying to education ourselves on what would be best for her. We have our paperwork in for a second opion from a different hospital and are working on getting the paperwork into St. Jude's Children's Hospital for their opinion and any suggestions. It is a difficult decision so we just want to have as much information as we can before we decide.
We are in the hospital right now for a routine drain change. But we should be able to go home tomorrow.
We are all looking forward to our upcoming trip to Utah. It will be a great break for us all.
Love,
Angie
Some more good news. Kaelyn has finished her protocol of chemo and we have decided not to start another 12 week course. We are going to see what her AFP does in the next month or two. So, she gets a much needed break! Yeah! If her AFP starts to rise again we will put her back on her treatment, but if not we will have a huge celebration! Wade and I are trying to make the decision whether or not to have the dead tumors removed from her lungs. A chest surgery is really hard on Kaelyn. Her surgeon wants to do the surgery, but her oncologist doesn't think it would be worth the risk. So we are trying to education ourselves on what would be best for her. We have our paperwork in for a second opion from a different hospital and are working on getting the paperwork into St. Jude's Children's Hospital for their opinion and any suggestions. It is a difficult decision so we just want to have as much information as we can before we decide.
We are in the hospital right now for a routine drain change. But we should be able to go home tomorrow.
We are all looking forward to our upcoming trip to Utah. It will be a great break for us all.
Love,
Angie
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