Not home...

Well, the tube change did not go as planned. She needed a new drain placed in the opposite side of the liver. They were able to take out the first one completely though. It looks like that area is healed and open. But the other spot is new and needs to be drained and dilated for a while. I bumped into Dr. Reyes in the hall yesterday and he told me that this liver is good. He said that "nothing is going to happen to this liver". He said that we just need to fix this narrowing and things should be fine...she may have to have a second drain placed just because of the positioning of this area, but there is no evidence of damage in any other part of the liver. That was the best news! He thinks that this is just a temporary thing and once we get it cleared her liver should be fine! I was so happy when he said this. "Nothing is going to happen to this liver"...music to my heart.

Unfortunately this tube placement was not so easy on Kaelyn. We are still in the hospital two days later. She got a blood infection from the placment of the drain and started to get fevers and chills. Luckily we were here and they started antibiotics right away, so no sepsis....thank heavens. But because of the postitive blood cultures we are still here. Hopefully tomorrow all of the lab results will be back on what antibiotics are best for this bug and we will be able to go home with IV meds. Atleast she is feeling much better.

Love to all!

Angie

In Cholangiogram

Kaelyn is currently in surgery to have her cholangiogram and tube exchange. It should be fairly uncomplicated since we have done this a million times. So far so good.

I wanted to share a photo of Kaelyn that the hospital is going to use for a national campaign. This was selected to be on display along with 49 others from several Children’s hospitals around the country. This exhibit will be on display in San Francisco at the NACHRI (National Association of Children's Hospitals and Related Institutions - now that's a mouth full!)spring conference from March 14-17th. The exhibit will then go to Washington DC and be on display on Capitol Hill sometime in June. Pretty cool, huh! She sure has changed.

Well, we should be home tonight as long as all goes well. Love to you all!

Angie

Kaelyn home

We got to go home on Saturday. There was no growth in her blood cultures, so we only have to do oral antibiotics at home, yippee! She is doing really good. She is going into the hospital tomorrow to have a cholangiogram and drain change. Hopefully that will take care of any stray bugs that may be in her system. We should be able to go home after the procedure.

Jacob went to his first sleep over party this weekend. He had a great time, he said he never went to sleep (though the mom of the friend said that everyone was asleep by about 10:30 pm). He was pretty tired the next day though, but not too grumpy. I can't believe how much he has grown! He has his first loose tooth too! What a big kid!

I love my kids...they are such a joy to me and bring so much light to my life. What a miracle they both are.

Love,

Angie