Stay one more night

So we did end up staying one more night after the tube replacement for a few more doses of IV antibiotic. But we are home now! Hurray! Kaelyn is doing great.


Angie

Tube change today

Kaelyn will be going in for a tube change and cholangiogram today. I am very happy that the docs actually listened to me and scheduled her. For some reason they are hesitant to change the drains unless she is in distress...I don't think that makes any sense. I want to avoid that, not wait for it. Needless to say, Wade and I are very frustrated with some of the doctors here (not all, we have met a few very nice docs). But the doc we see most is very hard to work with and she always seems to be out of town. We have been waiting for two months to hear what the long term plan is for Kaelyn and her biliary drain. And this doctor just, in our opinion, doesn't seem to see any urgency in figuring out a plan. Grrr!!! Of course, she is out of town this week, so no answers.

I'll stop complaining, now for the good news....after Kaelyn's tube change we get to go home! Yeah!

Angie

Bye, bye purple line....

Bittersweet as it is, Kaelyn's purple Power PIC is out. She had a fever on Friday night, late (of course) and so we headed into Primary around 2 am on Saturday morning. When we were in the ER trying to get labs, her central line (ie, purple line as Kaelyn called it) was leaking. Since she got this line in Seattle, 16 months ago, Primary does not have a repair kit for it. So, unfortunately or fortunately (I can't decide which one it is yet) we had to have it surgically removed today. The surgery went well, and pretty purple line is gone. What does this mean for Kaelyn? Well, she will have to get "poked" for all of her lab draws now and she will have to have an IV placed whenever she needs fluids or IV antibiotics. Ouch! But, it is one less conduit for bacteria to enter her body, which is a good thing. And one less foreign thing in her body to create infection. So, bittersweet. She will probably be inpatient for a few more days. She will probably have a cholangiogram and tube exchange while we are here. Her biliary drainage is smelly - usually a sign of infection.

But, regardless, she is doing very well. Playing with her horsies and watching Dora. Two of her most favorite activities...

Love all,

Angie