I am sorry it has taken me so long to write after our Disney trip. I think my mom is right when she said that I am still living in the Disneyland glow! We really had a good time. Jacob has said that he now wants to live in Disneyland. He loved all of the fast rollercoaster type rides, he is such an adrenaline junky!! It was so fun to see him have such a good time. It took Kaelyn a couple of days to get used to all of the lights and sounds of the park, she was pretty overstimulated. But by the last day, she had a really good time. She really liked the "It's a Small World" ride and the "Dumbo's Flying Elephant" ride. It was a good vacation, but it was also a lot of work! We are glad to be home, though we loved the fun we had.
I want to thank everyone who was so kind and generous in sending us donations to help pay for our trip. We actually received enough funds that we had very little out of pocket expense. It was such a surprise when we started receiving all of your kind gifts in the mail and from Wade's co-workers. We were in a little bit of shock I think! Anything that is left over after paying for our trip is being put into an account that is designated only for Kaelyn's care and emergencies. You all have given us such a wonderful gift, not just the money, but the knowledge of how many people are out there who care about us and our Kaelyn's well-being. Thank you again! I wish I could thank everyone in person and give you all a great big hug.
I can't put any pictures up from our trip in this post, because we are in the hospital with Kaelyn. So I will put some up in a future post. Kaelyn was supposed to start her Chemotherapy on Monday of this week. But when we went in to start, her labs came back with an elevated white blood cell count so our Oncologist didn't want to start therapy, nor did I. The next morning, Kaelyn woke up with a fever and we brought her into the ER. She has an infection where in her bile ducts, most likely from the biliary tube. She has been on some good antibiotics and went in yesterday for a new tube to be placed and for them to look at her biliary system to make sure that there is no blockages. We were really nervous, because the last time we did a surgery like this was when she went into septic shock. Thankfully, she came back from surgery yesterday healthy and well. They were able to place a new drain, the old one had a blockage in it and her biliary system did not have any blockages. So, we are currently giving her IV antibiotics to make sure she will fully recover from her infection and will probably start her chemotherapy on Monday.
Thank you again for all of your love and support through this time. We honestly gain strength from your prayers and concern for us. I know you all want to feel like you are doing something to help. You are. Just keep praying and thinking of us and our children. We love you.
Love,
Angie
