Saturday, December 06, 2008

Home sweet home...

Kaelyn was released from the hospital on Thursday night. Still no answers as to why she had such a high fever, so I guess it is being explained by a virus. Hopefully that is all it is and we've seen the last of it.

Time to get ready for Christmas!

Love to all,

Angie

Wednesday, December 03, 2008

CT Scans good

Kaelyn had her CT's last night and they didn't show any bile duct issues. Yeah for that. Since she started antibiotics, she has been feeling much better. So far, no growth on her blood cultures. So, who knows what brought all this on. I am just happy she is doing well.

Love,

Angie

Tuesday, December 02, 2008

Inpatient after almost a year and a half

So, I find myself in Primary Children's hospital ICS (Immunocompromised) Unit with sweet Kaelyn as an inpatient. It is a little surreal. We have gone almost a year and a half without having to "live" in the hospital. Normal is just a word...but I almost felt like we had once again attained it.

Kaelyn has been generally ill the past 10 days. Cold symptoms and such, but on Friday night, while we were visiting G-ma and G-pa Perry after Thanksgiving, she spiked a fever. The next morning I took her to the Urgent Care Clinic in Logan. They said, it's just a virus...I could not convince them otherwise. But she was doing better that day, so I went along with it. Mommy-senses told me otherwise. That night, she once again spiked a fever. But not as high, so I though she was getting better and she did well the rest of the day. Sunday night we went and got labs drawn, normal every two week labs. That night, once again - fevers. So I called the Liver doc and told them what was going on. They called me back after reviewing her labs and said that her liver numbers were up again and she was pretty dehydrated so they thought it best to admit her. I packed a bag and off we went. This was Monday afternoon. Monday evening and all through the night she fevered almost constantly. Her high was 105.3. She has not had a fever that high since she went into septic shock in Seattle. I was never so happy to be in the hospital. Today the docs are trying to figure out what is going on. Virus, liver, bacteria in the blood, appendicitis? The consensus for now is a possible abscess in her liver where a bile duct may not be draining properly or a bad virus. I hope it is the latter. We are going to do a CT Scan either today or tomorrow to check her liver.

Right now, she is sleeping and not fevering. They have started her on IV antibiotics and that seems to be helping. I will update when I find out more info.

As a side note...our Thanksgiving was great. We were able to spend it with my parents at their home. I have not been able to do that in many years! It was fun reminiscing with my mom and sister about how our favorite job on Thanksgiving as kids was to put the Cheese Whiz on the Celery. Isn't funny what you remember! I hope I can help my kids make those kind of fun, silly memories to think back on. Then we went up to Logan to spend time with Wade's parents. We helped them pick out a Christmas tree and decorate it. The kids really had a blast. Then when we got home we decorated our tree. Kaelyn was so proud that she was the one the spent the most time decorating. Jacob got a little tired (bored) and let her do most of it.

Time is precious and fleeting. Enjoy what you have, you may not have it tomorrow. If I have learned anything from life as Kaelyn's mom, it is to enjoy your time, love your family, don't worry about the little things. Take each moment, a moment at a time. As Elder Wirthlin said, in his last General Conference talk, before he passed away, "Come what may, and love it."

love,
Angie