Kaelyn is now listed on the UNOS (United Network for Organ Sharing) list for her liver!!!!! We found out at about 5:00 PM last night! We are all so relieved and excited that she finally is listed to receive her organ.
She has a window of about two weeks to receive her transplant. If we cannot get an organ before then, she will need to have her last course of chemo administered, and that means either having her transplant with dangerously low counts, or having to wait once again. And she will also have to try different chemotherapy after surgery, which we do not want. We ask all of you to please pray that a suitable organ may become available for Kaelyn within this two week window. We have all seen what the power of prayer has accomplished so far. Please continue to keep our Kaelyn in your prayers. We also would like prayers said for the family of whomever our liver comes from. Please ask for comfort for them, we know it will be a sad time for their family.
Love to all!
Angie
Thursday, September 09, 2004
Wednesday, September 08, 2004
September 8, 2004
Okay, our life is one rollercoaster ride after another! We heard yesterday afternoon from our insurance company. They have decided to let us stay here in Seattle for the transplant! Hooray! I believe that the power of prayer and everyones sacrifice in fasting has brought this wonderful news to pass. WE ARE STAYING!!!!!
Also, Jacob has started preschool today. He is so excited. And I am excited that we don't have to pull him away from his friends, family and school. Hopefully we can keep his life just as normal as possible. He is such a good boy. He is always wanting to help and saying the cutest things!
Thank you everyone for your prayers and fast. We love you!
~Angie
Also, Jacob has started preschool today. He is so excited. And I am excited that we don't have to pull him away from his friends, family and school. Hopefully we can keep his life just as normal as possible. He is such a good boy. He is always wanting to help and saying the cutest things!
Thank you everyone for your prayers and fast. We love you!
~Angie
Tuesday, September 07, 2004
September 7, 2004
Hello to Everyone,
Our insurance agency contacted us on Friday evening. They have denied our appeal to have Kaelyn's surgery in Seattle. Our surgeon here at Children's in Seattle believes we should continue to fight by going to the legislature and senate. Wade and I have decided that we are just too emotionally spent and could not handle anymore wait for our baby to receive the medical care she so desperately needs. So, Kaelyn and I are flying to CA on Wednesday evening(September 8th). Wade and Jacob will join us the following week.
I am in the process of trying to find a place for us to stay while we wait for a spot to open up at the Ronald McDonald House. I did receive a post in our guest book from a friend who actually lives very close to Palo Alto. So that may be a possibility.
Kaelyn and I will meet all the doctors on Thursday and possibly go through a few more tests. Then, hopefully, she will be able to be listed for her liver. After that, we just wait until an organ becomes available. I guess there really is no better place than sunny CA to wait for an organ! We are going to do some sight seeing and definitely go to the beach.
I believe that Heavenly Father is looking out for us and we will be in the best place possible for Kaelyn's transplant. We have put it into His hands. We wanted to say thank you to all of you who fasted for Kaelyn this weekend. I felt the spirit extremely well on Sunday and since then, things have been falling into place. His power in our lives is amazing and the strength I have received is what keeps me going.
Love to you all...
Angie
Our insurance agency contacted us on Friday evening. They have denied our appeal to have Kaelyn's surgery in Seattle. Our surgeon here at Children's in Seattle believes we should continue to fight by going to the legislature and senate. Wade and I have decided that we are just too emotionally spent and could not handle anymore wait for our baby to receive the medical care she so desperately needs. So, Kaelyn and I are flying to CA on Wednesday evening(September 8th). Wade and Jacob will join us the following week.
I am in the process of trying to find a place for us to stay while we wait for a spot to open up at the Ronald McDonald House. I did receive a post in our guest book from a friend who actually lives very close to Palo Alto. So that may be a possibility.
Kaelyn and I will meet all the doctors on Thursday and possibly go through a few more tests. Then, hopefully, she will be able to be listed for her liver. After that, we just wait until an organ becomes available. I guess there really is no better place than sunny CA to wait for an organ! We are going to do some sight seeing and definitely go to the beach.
I believe that Heavenly Father is looking out for us and we will be in the best place possible for Kaelyn's transplant. We have put it into His hands. We wanted to say thank you to all of you who fasted for Kaelyn this weekend. I felt the spirit extremely well on Sunday and since then, things have been falling into place. His power in our lives is amazing and the strength I have received is what keeps me going.
Love to you all...
Angie
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