Our insurance agency contacted us on Friday evening. They have denied our appeal to have Kaelyn's surgery in Seattle. Our surgeon here at Children's in Seattle believes we should continue to fight by going to the legislature and senate. Wade and I have decided that we are just too emotionally spent and could not handle anymore wait for our baby to receive the medical care she so desperately needs. So, Kaelyn and I are flying to CA on Wednesday evening(September 8th). Wade and Jacob will join us the following week.
I am in the process of trying to find a place for us to stay while we wait for a spot to open up at the Ronald McDonald House. I did receive a post in our guest book from a friend who actually lives very close to Palo Alto. So that may be a possibility.
Kaelyn and I will meet all the doctors on Thursday and possibly go through a few more tests. Then, hopefully, she will be able to be listed for her liver. After that, we just wait until an organ becomes available. I guess there really is no better place than sunny CA to wait for an organ! We are going to do some sight seeing and definitely go to the beach.
I believe that Heavenly Father is looking out for us and we will be in the best place possible for Kaelyn's transplant. We have put it into His hands. We wanted to say thank you to all of you who fasted for Kaelyn this weekend. I felt the spirit extremely well on Sunday and since then, things have been falling into place. His power in our lives is amazing and the strength I have received is what keeps me going.
Love to you all...
Angie
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