Well, our meeting with the transplant surgeon and liver specialist went really well yesterday. We said that we thought it was time for Kaelyn to be re-listed and they agreed! Wade and I were all ready for a battle, but it did not happen. We were so relieved. She just needs a few screening tests in the next couple of weeks and then she will be listed. It is exciting to be over the first phase of waiting, now we are going into the second phase of waiting on the list. She will not be as high on the list as she was the first time around, so it may be a few months (possibly 6 months or so) before she can receive a transplant. But, she honestly is doing very well and I think she can make it that long without too much difficulty. We will just keep going in for her drain to be changed out as often as needed during this period of waiting. Of course we will still be checking her AFP about once a month to screen for any cancer cells that may be growing. So far so good on that front though. Her AFP has remained stable at <.8 for three months. YEAH!!!!
Anyway... We appreciate all of you for your prayers and notes of concern and encouragement over the last two years. This website has been very cathartic to me. I love to read your notes on the guest book, so keep on writing!
Love to all of you,
Angie
