Kaelyn went in today for her first tube change here in Utah. They were two hours late getting her in, but that really isn't anything astonishing. It just means more hungry Kaelyn time to fill. The IR Doc here was a little baffled though, which in turn kindof baffled me. He said he was amazed that Kaelyn's liver was draining as well as it is. He said he was confused on how it all was working. I don't like to hear that a doctor is confused when he is taking care of my little angel. He said he was going to re-look at her previous scans sent from Seattle Children's and talk with a myriad of folks, including the liver surgeon and liver specialist here and also with the IR folks at Seattle Children's, not to mention his colleagues and anyone else he could think of. What does that mean as far as Kaelyn's future liver health, I don't know. She has a transplant clinic appointment on Monday, so I am writing a list of questions and concerns to bring up then. I am praying that this IR doc just hasn't seen a case like Kaelyn's. Hopefully after all of the discussing and studying of past scans will clarify that the liver is fine, like we have been told all along.
Well, we will see....
