So we had transplant clinic today. Dr. Book, her liver specialist, tried to explain to Wade and I what the IR doc saw in her last cholangiogram. It looks like the drain is not connecting to the rest of the biliary system, except for a couple of small ducts. She did say that the biliary tree looked good, but these small little links would not handle draining the entire biliary system without the catheter that is in place. So no pulling the tube anytime soon. Dr. Book said that she was going to send the Seattle docs (Horslen and Healey) the last cholangiogram and speak with them over the phone for some suggestions on what to do, since they know her system really well. Dr. Book said that most likely it will involve a biliary reconstruction surgery to open up the biliary system into one instead of two separate systems only connected by those little ducts. It's moments like these that I feel like second guessing our decision to move....but, I still feel that we need to be in Utah, so I guess we will just trudge on. I just really miss all of the familiar faces. And the trust that we had built up with all of the docs on Seattle. I want to trust the docs here, but I am so glad that they are willing to run by what they think and get the opinions of the Seattle team. I am just a little shocked, since when we left Seattle we were under the opinion that Kaelyn's biliary system looked great, and now one month later we are facing a surgery. I am looking forward to hearing what Docs Horslen and Healey have to say....
Well, I will write again when I have more info...
Love,
Angie
