Good news...

Kaelyn is doing so good! Her docs have given her the okay to start preschool! I think I will start her on Monday. She is so excited. It will be so good for her to do some normal three year old things and play with different kids. They also tapered down her prednisone (steroid) to every other day. Which is wonderful! The only issue that we have is with Bob, her JP drain. Dr. Healey thinks that maybe because we have had it to suction that there has been too much negetive pressure not allowing the little leak to heal. So, we have taken off the suction and will see what happens. So far, Bob is still draining but it will take time for the leak to heal.

Kaelyn does have a rountine CT scan and oncology clinic visit scheduled for the end of this month. We have to do this every three months. She also has a routine biliary drain change scheduled for the beginning of December. Hopefully all of this will lead up to a very uneventful, blissfully simple holiday season. If I don't post again before next week, everyone has a wonderful Thanksgiving!

Love,

Angie

PS: I finally posted some pics of the kids from halloween. The other is one that the hospital is using in one of there mailer add campains (my daughter, the super model!)

No news is good news!

I just wanted to post and let you all know that Kaelyn has been doing really well. It has been so fun watching her play while she feels good. We have had a really good two weeks. She does still have the JP drain, and it is still outputting some, but she sure doesn't let that slow her down! She calls it "Bob". I kept saying that we needed to go empty the bulb (the JP drain has a little bulb on the end to collect the fluid) and one day Kaelyn asked me, "mommy why is his name Bob?"! Ever since then the JP drain has been our friend Bob. It's very cute!

So I finally got the kids in for pictures the other day! Now I can replace the one I have on my wall with Kaelyn beautifully bald with an NG tube in her nose. The kids did great and we got some really cute pictures. I won't be getting them until December but it was all worth it. We had to brave the flood waters all around us to get to the photo place. It's been crazy wet around here. We went to the river a couple of days ago and it was so high and turbulent. They had all of the roads closed any where near the river. On wednesday Wade couldn't even get out of town to get to work! Our house is fine, but there are others that we know that have had some flooding. It's been very wet...

Anyway, all is well. Kaelyn goes in on Tuesday for her transplant clinic appointment and I am sure we will be talking about "Bob".

Angie