Kaelyn is in today for a routine biliary drain change. And it came no time too soon. She has started to get a little yellow over the past few days and I can tell that the bile is not draining internally very well again. Really though, we can't complain. This has been a record three weeks without any hospitalizations! It is time for a celebration! As long as everything goes well with the tube change we should only be inpatient for one night.
She is such a sweet girl. We love her so much, she is always dancing and singing when she feels good and loves to copy EVERYTHING Jacob does. They are really cute, those kids.
We are planning a trip to Utah the first week in August to visit with all our friends and family. We are all very excited to see everyone. I don't think we have all been to Utah since Kaelyn was 2 months old! I couldn't believe it has been so long. We really can't wait to see everyone again.
Now time for the not so great news. We met with the oncologists last week,they are not hopeful for this chemotherapy to be a long term cure. Though we knew that when we started, but we were more hopeful that we would get a few more good years, possibly 10 or so but they are giving her a possibility of two years left of her sweet life. We will continue with her chemo for as long as her body tolerates it and her cancer is responding to it. Most likely her cancer will become chemo-resistant and it will no longer be affective, though we don't know how long it will take the cancer to evolve to that state. It could be a year or two or it could be a few months. This new chemotherapy she is on is the best out there for her condition. It has provided many children with more time. Before Irinotecan came out the kids only lasted 6 months or so. So we have to be thankful for the blessing of new medicine, it is giving us more time. And who knows, maybe in more time another new drug will be developed. I believe there is always hope and we can always rely on Heavenly Father for a miracle, even if it is in the miracle of peace and comfort. True, last week was a very difficult week for us, our rose colored glasses were removed and we saw this situation for what it is. But we have her now and she is doing really well, what more do we need. Please continue to keep Kaelyn in your prayers. She is such a brave, beautiful little girl. And I know that your prayers are helping all of us.
Please don't let the news get you down. We are all children of God and He will comfort us in our sorrows and rejoice with us in our triumphs. Kaelyn willl be all right and so will we.
We love you all,
Angie
