How quickly can things change between posts? On Monday of this week we had a joint meeting with Kaelyn's Oncologist and her transplant surgeon. The purpose was to clear up any differences between the two services. Our Oncologist had heard from the liver people that Kaelyn was still in the running for a new liver - where as we had heard that she was probably going to not need another transplant. So we went into the meeting with some questions. Dr. Healey (transplant surgeon) said that if she was a "normal" transplant patient without any other issues (cancer) that she would have already had a retransplant or at least be on the list for one. The reason being that her bile ducts are so greatly damaged. But because of her lung mets she is not elligible for retransplant. The plan for now (which can always change) is to see how Kaelyn does on her two weeks off that are coming up and test her AFP after that. If it has remained stable we will go in and have Dr. Healey remove the lung mets. If the result comes back that there is no viable tumor in her lungs then we can go into a waiting period to see if her cancer will come back within a set amount of time between 6 months to a year. If she can stay cancer free for that period of time with a stable AFP than she can be relisted for another liver. If it does come back with viable tumor left we will continue on treatment and just manage the liver as best as we can with the drains. We will also have the added knowlege of whether the cancer is in fact still viable. It is a scary prospect to take her off of her chemo, but if it will result in a new, healthy liver it is worth it. We knew that the time would come that we would have to take her off treatment, and that time may be soon.
Please just pray for our angel that she will recieve the miracle that is needed for her. I am not sure what that may be, but I know that God has a great plan for our little girl. I know what I want to have happen, but I put my trust in Him.
Love to all -
Angie
