So, Kaelyn had labs drawn on Monday of this week. We got a call on Tuesday saying that her liver numbers were significantly elevated. Dr. Book scheduled her for a liver biopsy on Wednesday. She had not been feeling the greatest the previous few days, fever and nausea. She also had been really itchy. Her kindergarten teacher even commented on it when i picked her up on Monday from school. We went in on Wednesday to do the biopsy. After the procedure she felt really crummy. She vomited and spiked a fever. Then she felt like she couldn't breath and her O2 saturation kept falling below normal. So we put her on oxygen and some anti-nausea meds. An X-ray was done to make sure she wasn't bleeding. She wasn't. So what was going on? We were finally admitted to the hospital about 3 am. The next morning when she woke up she was as yellow as a daffodil. Her bilirubin jumped from 0.2 to 5.9 in two days. She also has the flu. Thus the vomiting, fever, and difficulty breathing but that did not explain the rise in bilirubin. So we went in for an ultrasound. This didn't show too much change from the one we did in January. A little narrowing in the common bile duct, and still some dilitation in the interior bile ducts. Her biopsy did not show any rejection, which is good. Dr. Book met with the liver surgeons to discuss Kaelyn. They think that a surgery to connect the bile ducts to the intestines would be the best option for her. I wasn't in the room when the dr's explained it to Wade, so I can't describe the procedure better until I talk to the surgeons. Hopefully I will be able to talk to them today.
I can't believe we are back to this. This happened really fast. She isn't feeling very good. So I need to get back to her. I will try and update as I can.
~Angie
