July 1, 2004

Well, this website stuff is pretty great. I am excited to keep everyone updated on a more frequent basis.

Kaelyn is starting to feel a little tired today. I think her hematocrit (red blood cell count) is getting low. Yesterday we went in for a check up with the doctor and her count was at 22.8 which they have been giving her a blood transfusion when she gets to 21. A normal count is above 35, so she is getting pretty low. She just gets really pale and really sleepy. So, I am going to go take her in tomorrow for a blood count check and we will see what they want to do. We do have some good news from her check up yesterday though, she has gained some weight!!! Yeah! She is now at 17 lbs 4 oz! Which is great. She bottomed out at 15 lbs about a month ago, so the tube feeding is well worth it.

Jacob is such a sweet heart! We are finding him a new preschool to go to in the fall. He is getting excited, but he did tell me that he is feeling a little shy about going to a new school. Knowing him though, he will waltz through the door on the first day and make a ton of new friends! He is such a friendly boy! He loves summer and is having fun playing at all the beaches and, of course, playing with his daddy's game boy...

By the way, we have sold our condo! Yeah! It closes on the 27th of July. It is such a relief to have that off of our minds.

Well, I will let you all know how it goes tomorrow at the doctor.

~Angie

The Family

This is a picture of all of us together.

Hello Everyone!

Here is the newest news on Kaelyn's condition. We had a CT Scan done on Wednesday this week. Everything is looking wonderful. Wade and I saw the first scans that were done when she was first diagnosed compared to these latest scans and the tumors have shrunk amazingly well. Her liver tumor is at a size where they could resect it if she didn't have the lung metasteses. And the lung tumors are probably 2/3's the size of what they were before we started chemo! It was really great to see the comparison. It helped us feel that all of this chemo is doing it's job and that we can make it
through!

So, I am sure you are all wondering where we go from here. We have already started her third round of chemo and expect to do at least one more round. So the time frame is 6 more weeks of chemo and then they will do another CT Scan to see the progress once again. The doctors seem to expect that after these two rounds of chemo that her lung tumors will be gone and then they will be able to perform surgery to resect the liver tumor. This is all VERY good news to us. After surgery she will still have to do 2 more rounds of chemo (6 weeks) to kill any left over cancer cells. But then she will only have to go into the doctor for check ups, no more chemo by Christmas if all goes well! This is what we hope and pray will happen.

Keep us in your prayers...His power is amazing. We feel His love all around us and the strength just keeps coming even when I think I have no more. Thank you for your support and prayers. We love you all and will keep you updated as often as we can.

Love to you!
Angie Perry