Okay, hospital time is fairly obnoxious! We arrived yesterday afternoon about 4 pm. They first told us that surgery would start at midnight, then 4 am, they 6:30am and finally they took her in at 8 am. But I guess that is just how it goes. I am just happy that she is finally getting her new liver. When we asked Kaelyn what she was doing today she said, "Getting my new liver!". It was very cute.
Okay will try to update this site every two hours or so. That is when the nurse in the OR will be giving us the newest updates.
Love you all,
Angie
Thursday, August 31, 2006
Wednesday, August 30, 2006
TRANSPLANT DAY!!!!
Today at 2:00 pm we got the call we have been waiting 5 months to get. We have a suitable donor, come into the hospital it's transplant time! So, we have been in here at Children's for quite a few hours just waiting. We were just told that the surgery time is 4:00 am tomorrow morning. I will keep this site updated as soon as I can.
Love to all,
Angie
Love to all,
Angie
Wednesday, August 23, 2006
AFP rising..
Well, not so great of news today. Kaelyn's AFP was up to 14.9 today compared to <0.8 two weeks ago. The surgeons are not going to worry about it though unless they see a much greater increase. But we are going to be checking her AFP levels weekly now. She is still active on the transplant list and will be considered for any acceptable offers. But it sure is a worry on mine and Wade's hearts. Her AFP has been stable at <0.8 for 9 months, why is it rising now? I guess only time will tell.
Please keep praying for sweet Kaelyn.
Love,
Angie
Please keep praying for sweet Kaelyn.
Love,
Angie
Wednesday, August 16, 2006
Words of Wisdom and Comfort
A friend of mine whose son just had a liver transplant two weeks ago because of hepatoblastoma found this article from President James E. Faust, who was a member of the quorum of the twelve at the time. ("the refiner's fire" Ensign May 1979, this is just an excerpt). I really felt that it was powerfully written and even more powerfully received.
"Here then is a great truth. In the pain, the agony, and the heroic endeavors of life, we pass through a refiner’s fire, and the insignificant and the unimportant in our lives can melt away like dross and make our faith bright, intact, and strong. In this way the divine image can be mirrored from the soul. It is part of the purging toll exacted of some to become acquainted with God. In the agonies of life, we seem to listen better to the faint, godly whisperings of the Divine Shepherd."
"Into every life there come the painful, despairing days of adversity and buffeting. There seems to be a full measure of anguish, sorrow, and often heartbreak for everyone, including those who earnestly seek to do right and be faithful. The thorns that prick, that stick in the flesh, that hurt, often change lives which seem robbed of significance and hope. This change comes about through a refining process which often seems cruel and hard. In this way the soul can become like soft clay in the hands of the Master in building lives of faith, usefulness, beauty, and strength. For some, the refiner’s fire causes a loss of belief and faith in God, but those with eternal perspective understand that such refining is part of the perfection process."
"In our extremities, it is possible to become born again, born anew, renewed in heart and spirit. We no longer ride with the flow of the crowd, but instead we enjoy the promise of Isaiah to be renewed in our strength and “mount up with wings as eagles” (Isa. 40:31)."
"The proving of one’s faith goes before the witnessing, for Moroni testified, “Ye receive no witness until after the trial of your faith” (Ether 12:6). This trial of faith can become a priceless experience. Stated Peter, “That the trial of your faith, being much more precious than of gold that perisheth, though it be tried with fire, might be found unto praise and honour and glory at the appearing of Jesus Christ” (1 Pet. 1:7). Trials and adversity can be preparatory to becoming born anew."
"The Divine Shepherd has a message of hope, strength, and deliverance for all. If there were no night, we would not appreciate the day, nor could we see the stars and the vastness of the heavens. We must partake of the bitter with the sweet. There is a divine purpose in the adversities we encounter every day. They prepare, they purge, they purify, and thus they bless."
"When we pluck the roses, we find we often cannot avoid the thorns which spring from the same stem."
"Out of the refiner’s fire can come a glorious deliverance. It can be a noble and lasting rebirth. The price to become acquainted with God will have been paid. There can come a sacred peace. There will be a reawakening of dormant, inner resources. A comfortable cloak of righteousness will be drawn around us to protect us and to keep us warm spiritually. Self-pity will vanish as our blessings are counted."
Please consider these words as you go through life and encouter trials and difficulty. There is a reason, we may not understand or even want the trial, but it is for our spiritual survival. I know we have wondered countless times, why...why Kaelyn, why our family, why any family...but if we endure we can achieve a "glorious deliverance" and we can receive a "sacred peace".
We are now home from the hospital. And all is well at the moment. Relish in the good days and battle through the bad. Soon Kaelyn's transplant will come. I will post as soon as we get the call.
Love to all,
Angie
"Here then is a great truth. In the pain, the agony, and the heroic endeavors of life, we pass through a refiner’s fire, and the insignificant and the unimportant in our lives can melt away like dross and make our faith bright, intact, and strong. In this way the divine image can be mirrored from the soul. It is part of the purging toll exacted of some to become acquainted with God. In the agonies of life, we seem to listen better to the faint, godly whisperings of the Divine Shepherd."
"Into every life there come the painful, despairing days of adversity and buffeting. There seems to be a full measure of anguish, sorrow, and often heartbreak for everyone, including those who earnestly seek to do right and be faithful. The thorns that prick, that stick in the flesh, that hurt, often change lives which seem robbed of significance and hope. This change comes about through a refining process which often seems cruel and hard. In this way the soul can become like soft clay in the hands of the Master in building lives of faith, usefulness, beauty, and strength. For some, the refiner’s fire causes a loss of belief and faith in God, but those with eternal perspective understand that such refining is part of the perfection process."
"In our extremities, it is possible to become born again, born anew, renewed in heart and spirit. We no longer ride with the flow of the crowd, but instead we enjoy the promise of Isaiah to be renewed in our strength and “mount up with wings as eagles” (Isa. 40:31)."
"The proving of one’s faith goes before the witnessing, for Moroni testified, “Ye receive no witness until after the trial of your faith” (Ether 12:6). This trial of faith can become a priceless experience. Stated Peter, “That the trial of your faith, being much more precious than of gold that perisheth, though it be tried with fire, might be found unto praise and honour and glory at the appearing of Jesus Christ” (1 Pet. 1:7). Trials and adversity can be preparatory to becoming born anew."
"The Divine Shepherd has a message of hope, strength, and deliverance for all. If there were no night, we would not appreciate the day, nor could we see the stars and the vastness of the heavens. We must partake of the bitter with the sweet. There is a divine purpose in the adversities we encounter every day. They prepare, they purge, they purify, and thus they bless."
"When we pluck the roses, we find we often cannot avoid the thorns which spring from the same stem."
"Out of the refiner’s fire can come a glorious deliverance. It can be a noble and lasting rebirth. The price to become acquainted with God will have been paid. There can come a sacred peace. There will be a reawakening of dormant, inner resources. A comfortable cloak of righteousness will be drawn around us to protect us and to keep us warm spiritually. Self-pity will vanish as our blessings are counted."
Please consider these words as you go through life and encouter trials and difficulty. There is a reason, we may not understand or even want the trial, but it is for our spiritual survival. I know we have wondered countless times, why...why Kaelyn, why our family, why any family...but if we endure we can achieve a "glorious deliverance" and we can receive a "sacred peace".
We are now home from the hospital. And all is well at the moment. Relish in the good days and battle through the bad. Soon Kaelyn's transplant will come. I will post as soon as we get the call.
Love to all,
Angie
Wednesday, August 09, 2006
False Alarm
This morning at rounds (Kaelyn is in the hospital for a blood infection, she is fine and doing well now) Dr. Reyes, head of surgery, said that today may be the day for transplant. They had a potential donor. We were all so excited! They just had to get labs and rush the donor to the OR and check out the organ. But, unfortunately, the organ was not suitable, so no transplant today. It was disappointing, but this also means that the time is very soon we will get a suitable organ. So, disappointment is directed into excitment and anxiety. I think it will be soon. She also was upgraded once again on the list to a 30 from 24. This puts her at the top of the list for her blood type.
I know this post is very disorganized but so is life right now! Love to all, keep us in your prayers.
~Angie
I know this post is very disorganized but so is life right now! Love to all, keep us in your prayers.
~Angie
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