Thursday, October 21, 2004

I forgot to mention that Kaelyn got to see one of the therapy dogs a couple of days ago. His name was Sugar Bear. He was in the ICU making his "rounds" and stopped by. Kaelyn really liked him a lot. It was very cute how she just loved looking at him. She was sad when he had to go. It was a very good distraction for her.

Yesterday was an interesting day. The suction on Kaelyn's NG tube (stomach pump) had been turned up way to high. Wade actually was the one who noticed it. He kept seeing red and pink fluid being dropped into her container. He mentioned it to the nurse, who promptly turned down the suction. But in result of it being up to high she was having some bleeding in her tummy. They think the suction was stuck on her stomach wall causing it to bleed. They turned down her heparine (blood thinner) by half and gave her some prevacid (acid reducer). It did stop bleeding and they eventually were able to turn her heparine back up to it's regular level. We were a little concerned about all of this since her heparine is what will hopefully unclogg her hepatic artery. Another "mistake" happened also, one of the residents left her computer logged on and someone (?) discontinued some of Kaelyn's antibiotics. These antibiotics are what are keeping her white blood cell count down so she will not reject her new liver. Luckily we had a great nurse yesterday who caught the mistake early and got her meds reestablished. It was all very disconcerting to us to have these two "mistakes" happen in the care of our baby. These things should not happen, especially to someone in the ICU! But atleast they were both caught early so no permanent damage was caused. I know that Wade and I are going to be just that much more aware in everything that is being done to our daughter from now on. I know that mistakes are made, but I wish they just wouldn't happen to our girl.

Anyway. Enough of my complaining. All in all, she has gotten great care and things are still going pretty good. She will get another ultrasound today to see if we can find any more blood flow to her liver from her hepatic artery. Say a little prayer for that today. I will update as soon as I find out any further info.

Love to all,

Angie

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