Well, on Wednesday night (night before schedule tube change) Kaelyn came down with chills and fevers...off to the hospital ER we go. Once again she has positive blood cultures! It just comes on so fast. She was playing and dancing one minute and chilling and fevering the next. She did have her cholangiogram and tube change on Thursday as planed and everything went well. The docs say that her bile ducts look great and the narrowing is getting better, it's more elastic than solid, which is good. One thing that they noticed that may be causing all of these infections is a sludge ball in one of the bile ducts. It looks almost like a gall stone. The IR Doc tried to suction it out, but it didn't budge. So, the next tube change they are going to try and dissolve it a little with some special bile thinner stuff. Hopefully that will loosen it enough to were it can be suctioned out.
We are still inpatient and will probably remain such until Monday. Her cultures have come back positive two days in a row. Hopefully todays will stay negative. The docs need to have two consecutive negative cultures in order to send us home.
Love,
Angie
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