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We did get to come home on Friday, yeah! But, she has a cold now. No fun. As long as she doesn't get a fever we will be able to stay out of the hospital, cross your fingers.

On Wednesday Kaelyn get her ear molds made for her hearing aids. Hopefully that will go well. They just squirt some pick goo into her ears. It's soft and cold, so I think she will be all right.

Angie

Still inpatient...

Okay, so on Monday Kaelyn had her drain changed and cholangiogram done. The IR Docs were able to get out a bunch more of the sludge ball and dilated the two strictures (areas of narrowing) in her bile ducts. Things look pretty good in there. She is feeling much better. We are just waiting for two days of negative cultures. We have had one day, so hopefully yesterdays will come back negative and will be able to go home today. Fingers crossed.

Kaelyn was really funny yesterday. Her preschool teacher, Marilyn, came by for a visit and brought her a tiger mask from the zoo. Kaelyn loved it! I have never seen her so aggressive as when she put on the mask! She ran around the whole unit "scaring" all of the nurses, even other parents when they would come out of the rooms she would go right up to them and growl! It was so funny! She wore it for a very long time, even down to the cafeteria and play room. What a hoot!

Anyway, I guess that just shows you how good she is feeling, I think she needs to wear the mask when the docs come by and scare them into letting us go home today! Roar!

Love to all!

Angie

Back in...

On Saturday night Kaelyn spiked a fever, so back in we went. She topped out at 104 degrees. It was no fun. She is feeling much better now after starting IV antibiotics. Right now she is having her drained changed and a cholangiogram. It was a very long day with a grumpy, hungry girl - but she should feel much better with a new, clean drain. She does have positive blood cultures so we will be inpatient for atleast a couple of days.

Angie

In and out, in and out....

Last Friday around 11:30 pm Kaelyn spiked another fever. So into the hospital we went. Of course not much gets done over the weekend at the hospital so we waited until monday. All of her cultures were negative so they let us go home after two days of antibiotics with a cholangiogram and tube change scheduled for April 26th. Well, last night (Thursday) Kaelyn started to not look like she felt very well and acting very cranky. This is all usually a sign that things are heading for a fever. So far so good though...no fever through the night. But I am still leery. I guess we just wait it out. But we are heading for another weekend...that usually means time in the ER and two days spent without any action done....blah. Oh well...

On a different note, we are painting the trim of our house today...fun stuff! It really needs it. We scraped paint and taped the trim yesterday...not so fun stuff. But now it is already to look beautiful! So hopefully we can stay out of the hospital long enough to get this done.

Last wednesday we took Kaelyn in for her ENT appointment. He looked in her ears and of course couldn't see anything because of all of the wax. So he cleaned her ears, which was very tramatic, and everything looks good. She is cleared to get her molds done for her hearing aids. That appointment is scheduled for May 2nd. Then she will be fitted for the hearing aids the end of May. That will be very interesting. She hates things in her ears!

Right now everything is calm in the Perry house...whew...

Love,

Angie

Sludge Ball gone!!

Kaelyn had a cholangiogram and tube change last thursday and they removed the sludge ball! It was so exciting to hear that! The IR Doc came in after surgery and told me they took it out and he was ecstatic! I love it when the docs come in excited, that means something good has happened! He also said that her bile ducts look great. I am really excited about that.

They broke up the sludge ball in to two pieces and they got two pieces out, but Kaelyn is having white stools again with some burning bowel movements. That usually means that her tube is plugged. So I am wondering if maybe some debris was left over and has plugged up the tube. Bahhhh....oh well, at least the major obstacle is out. If we have to do a few more frequent tube changes so be it. I am just thankful and hoping that this will mean fewer infections for the sweety.

Well, the kids are on spring break this week, so we should have some fun. We might go to the zoo sometime as long as we can keep Kaelyn out of the hospital (knock on wood!).

Love you all!

Angie