Kaelyn Repeat CT

Kaelyn had a repeat CT scan done on Monday to check the inflammation that they saw in the intestines during the last scan done in June. I haven't heard back from them yet, but wanted to post an update anyway! She, of course, amazed all of the CT techs at Primary Children's. They told her that she is their best patient and that she does better than the teenagers! They had to poke her three times before they could get the IV in, and she didn't even cry. She just told them that she doesn't like it when she has to get poked. And then went on to talk about how she gets to start kindergarten this year (while they are poking her!). Brave little girlie.

We just got back a few days ago from a Perry family reunion. We all had such a great time. The kids had so much fun playing with all of their cousins! I really miss that WA clan. All of the kids got to ride Wade, Jacob, and Uncle Jim's dirt bikes and I think they all had a blast. Wade did a head dive over the handle bars and got bruised up pretty good, but overall they all had fun (he's fine, honestly). Lots of good times.

Kaelyn and Jacob start school in three weeks (the first day of school just happens to land on Jacob's 8th birthday - he's a little bummed about that). Kaelyn is so excited, she keeps asking me when she can go to kindergarten. I am just amazed and so thankful that she is making it to this milestone, healthy and well. What a humongous blessing. And Jacob starts 3rd grade! I remember 3rd grade...he also is going to be baptized soon after his birthday. I am so proud of him. He is growing up faster that I can stop him!

Well, I will update more as I hear about the scans.

Love,
Angie

Kaelyn and Jacob

Kaelyn and Jacob, originally uploaded by perryupdate.

I had to put this picture up on the blog. Too cute! I love these kids....I also added a whole bunch of pictures, including Kaelyn's birthday, onto flickr. Just click on the link to the right. Enjoy!

CT Scan Results

Kaelyn's CT Scans went very well last week. There is no evidence of disease! Hip Hip Hurray! The only thing that was a little concerning was that there is some inflammation in her intestines. We are not sure what is causing this. So, at the end of the month we will talk with her liver docs about that. She may have to have another CT scan in 3 months to see if the inflammation as gone down. But over all, we are ecstatic with the results!

Love,
Angie

AFP

So, Kaelyn had labs last week and her AFP is 2.1. Still in the normal range! Yeah! Her liver labs look okay, they are up a little since last month, but really nothing to worry about.

Kaelyn has her 6 month CT scan and Oncology visit on Thursday this week. I will update later on that.

I promise I will get birthday pictures up soon!

love,

Angie

Tubes in Ears and birthday number 5

So, Kaelyn has had multiple ear infections ever since we removed her tonsils in February. So, I took her into the ENT yesterday and they want to place tubes in her ears tomorrow. It is affecting her hearing, which already isn't the best. I guess it is not too involved of a surgery. She should even still be able to continue her swimming lessons that she just started yesterday. Speaking of....I think my little girl is really Ariel the Little Mermaid in disguise! She loves to swim! She really hasn't had much of a chance to be able to swim in her almost 5 years. So it is so fun to watch her in the water!

She also is very excited,Sunday is her 5th birthday. She keeps asking me if she will be as tall as a grown-up when she is five! Seeing how that is in less than a week, and she is only 3 foot 1, I am guessing it's not going to happen! Oh, and this is a funny one, what she really wants for her birthday is a little sister....that one too, is not going to happen in less than a week! Kaelyn is growing up so fast...though she can't see it in the mirror, I can see it in her. What a blessing, our little girl, who was said was not going to make it past 2 is going to be 5 years old. What more can I ask for.

Love,

Angie