I have not updated the website in a while. It has been a very busy couple of weeks.
Kaelyn has had to have yet another blood transfusion. She also had a sore on her bottem lanced. That was not a fun event. We were admitted overnight for her to recieve some IV antibiotics. Even after all of this, she is so happy! I just know that the she is being embraced by Heavenly arms. She amazes me every day.
We also moved out of our condo this past weekend. It has really been a very stressful week! Boy are we all glad that the condo is almost out of our hair. We are set to sign closing papers on Thursday this week. It will be a blessing to have that finished.
Kaelyn is scheduled to have a CT scan on the 6th of August. We have high hopes for the results of the scan. The docs say that if the tumors in the lungs have all died then we will be in surgury a few days after the scan. As scary as that sounds to me, it will be so wonderful to have that liver tumor removed. After surgury they will give her a little time to recover and then it will be back to more chemo. She will need two more courses which equal six more weeks. Our hope and prayer will be that after all of this she will be cancer free!
We love you all and thank you for all of your help and prayers.
Love,
Angie
Tuesday, July 27, 2004
Tuesday, July 06, 2004
July 6, 2004
We had a really great 4th of July. Our neighbors here had a huge show. It was just as good as the professional ones. So, we put Kaelyn to bed, grabbed the baby monitor and went next door! Jacob almost made it to the end, he fell asleep in my arms about 10:30 pm. He had such a blast!
Last Friday, July 2, I took Kaelyn in to get her counts checked. Her Hermaticrit (red blood cell count) was lower than it has ever been - 19.8. So, we spent the day at the hospital getting a blood transfusion. It is amazing what a difference it makes in her energy level! She has been trying to walk and scoot around since Friday. I think she will be walking soon if we keep having her practice! And boy does she want to practice!
Well, I have to make this posting short, Kaelyn is calling.
Love to all.
Angie
Last Friday, July 2, I took Kaelyn in to get her counts checked. Her Hermaticrit (red blood cell count) was lower than it has ever been - 19.8. So, we spent the day at the hospital getting a blood transfusion. It is amazing what a difference it makes in her energy level! She has been trying to walk and scoot around since Friday. I think she will be walking soon if we keep having her practice! And boy does she want to practice!
Well, I have to make this posting short, Kaelyn is calling.
Love to all.
Angie
Thursday, July 01, 2004
July 1, 2004
Well, this website stuff is pretty great. I am excited to keep everyone updated on a more frequent basis.
Kaelyn is starting to feel a little tired today. I think her hematocrit (red blood cell count) is getting low. Yesterday we went in for a check up with the doctor and her count was at 22.8 which they have been giving her a blood transfusion when she gets to 21. A normal count is above 35, so she is getting pretty low. She just gets really pale and really sleepy. So, I am going to go take her in tomorrow for a blood count check and we will see what they want to do. We do have some good news from her check up yesterday though, she has gained some weight!!! Yeah! She is now at 17 lbs 4 oz! Which is great. She bottomed out at 15 lbs about a month ago, so the tube feeding is well worth it.
Jacob is such a sweet heart! We are finding him a new preschool to go to in the fall. He is getting excited, but he did tell me that he is feeling a little shy about going to a new school. Knowing him though, he will waltz through the door on the first day and make a ton of new friends! He is such a friendly boy! He loves summer and is having fun playing at all the beaches and, of course, playing with his daddy's game boy...
By the way, we have sold our condo! Yeah! It closes on the 27th of July. It is such a relief to have that off of our minds.
Well, I will let you all know how it goes tomorrow at the doctor.
~Angie
Kaelyn is starting to feel a little tired today. I think her hematocrit (red blood cell count) is getting low. Yesterday we went in for a check up with the doctor and her count was at 22.8 which they have been giving her a blood transfusion when she gets to 21. A normal count is above 35, so she is getting pretty low. She just gets really pale and really sleepy. So, I am going to go take her in tomorrow for a blood count check and we will see what they want to do. We do have some good news from her check up yesterday though, she has gained some weight!!! Yeah! She is now at 17 lbs 4 oz! Which is great. She bottomed out at 15 lbs about a month ago, so the tube feeding is well worth it.
Jacob is such a sweet heart! We are finding him a new preschool to go to in the fall. He is getting excited, but he did tell me that he is feeling a little shy about going to a new school. Knowing him though, he will waltz through the door on the first day and make a ton of new friends! He is such a friendly boy! He loves summer and is having fun playing at all the beaches and, of course, playing with his daddy's game boy...
By the way, we have sold our condo! Yeah! It closes on the 27th of July. It is such a relief to have that off of our minds.
Well, I will let you all know how it goes tomorrow at the doctor.
~Angie
Tuesday, June 29, 2004
Hello Everyone!
Here is the newest news on Kaelyn's condition. We had a CT Scan done on Wednesday this week. Everything is looking wonderful. Wade and I saw the first scans that were done when she was first diagnosed compared to these latest scans and the tumors have shrunk amazingly well. Her liver tumor is at a size where they could resect it if she didn't have the lung metasteses. And the lung tumors are probably 2/3's the size of what they were before we started chemo! It was really great to see the comparison. It helped us feel that all of this chemo is doing it's job and that we can make it
through!
So, I am sure you are all wondering where we go from here. We have already started her third round of chemo and expect to do at least one more round. So the time frame is 6 more weeks of chemo and then they will do another CT Scan to see the progress once again. The doctors seem to expect that after these two rounds of chemo that her lung tumors will be gone and then they will be able to perform surgery to resect the liver tumor. This is all VERY good news to us. After surgery she will still have to do 2 more rounds of chemo (6 weeks) to kill any left over cancer cells. But then she will only have to go into the doctor for check ups, no more chemo by Christmas if all goes well! This is what we hope and pray will happen.
Keep us in your prayers...His power is amazing. We feel His love all around us and the strength just keeps coming even when I think I have no more. Thank you for your support and prayers. We love you all and will keep you updated as often as we can.
Love to you!
Angie Perry
through!
So, I am sure you are all wondering where we go from here. We have already started her third round of chemo and expect to do at least one more round. So the time frame is 6 more weeks of chemo and then they will do another CT Scan to see the progress once again. The doctors seem to expect that after these two rounds of chemo that her lung tumors will be gone and then they will be able to perform surgery to resect the liver tumor. This is all VERY good news to us. After surgery she will still have to do 2 more rounds of chemo (6 weeks) to kill any left over cancer cells. But then she will only have to go into the doctor for check ups, no more chemo by Christmas if all goes well! This is what we hope and pray will happen.
Keep us in your prayers...His power is amazing. We feel His love all around us and the strength just keeps coming even when I think I have no more. Thank you for your support and prayers. We love you all and will keep you updated as often as we can.
Love to you!
Angie Perry
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