Home Sweet Home....

We are finally in a home of our own and I love it! The kids have made friends already and things are starting to get unpacked. The neighborhood is amazing. Everyone is so friendly. Kaelyn has been well for almost two weeks. It has been such a blessing to have this time to try and settle in. I hope it continues!

Love,

Angie

Discharged...

Yeah! Kaelyn was discharged yesterday. She had no growth on her cultures and her cholangiogram went very well. They did it without sedation to see if the tube was blocked or if there were any new strictures or pooling of bile. Kaelyn is such a super girl! She did just great. The IR Docs did not see anything new. There was a slight stricture in the same spot as usual, but bile was flowing just fine through it. She also had her 6 month routine CT scans done, again without sedation! I think all of the techs and radiologists think she is amazing (and she is, of course). She was so still, it went very well. I have not heard results from that. On Monday we have her official transplant clinic appointment. I think we are going to discuss her ct's then.

Well, all is going great so far. We are going to move into our new home on Monday. I finally got to see it for myself last night, Wade did good. It is so cute! I really love it!

Love,

Angie

AFP Results...

Kaelyn had an AFP drawn this morning. It came back as 1.1, normal! Yeah! There is always such anticipation when we draw this, so I am so relieved.

She will have her cholangiogram and tube change on monday. So far, no growth on her cultures.

Everyone here at Primary Children's have been so great. It is an adjustment, we do miss our nurses and docs in Seattle, but I think Kaelyn will be well taken care of here.

Love,

Angie

Primary Children's Hospital

Well, long story short - we are already in Utah. We had to move a few weeks early for insurance reasons. Crazy - I am glad that the packing part is done. But, not even 12 hours after pulling into my parents house yesterday, we areexploring Primary Children's in Salt Lake as an inpatient. I flushed Kaelyn's drain this morning and there was some resistance and than whoosh, so I think I dislodged something. I called the liver folks here and tried to get a cholangiogram scheduled. But no more than an hour later Kaelyn started chilling and then spiked a fever. So off we went into Primary's. I am fairly certain she will have positive blood cultures. We changed her dressing on both her drain and her central line. Both of them looked a little red and the drain actually smells a little funny. So, more antibiotics here we come! The crazy thing is that she just finished her last two week course of antibiotics on Wednesday. Something is going on. We just have to figure out what that something is. They did an ultrasound today and it looked good. Probably tomorrow they will do a cholangiogram to see if there are any strictures in her biliary system.

All of this after an 18 1/2 hour drive with two kids and a cat. I think I am a little tired.

Love,

Ang

Birthday pictures