AFP results

Kaelyn's latest AFP was drawn last friday. I am happy to say that she is still kicking cancer's booty! It was 1.8, amazing, considering when she was first diagnosed three years ago it was almost 500,000.

She is really enjoying being tubeless. It has been so fun to see her go to school and play and be just Kaelyn...no obvious signs of illness to be seen anywhere! Love it!

Love to everyone...

Angie

Candlelighters' Quest to Cure Childhood Cancer

This is a video that Candlelighter's is promoting to raise money for Targeted Therapy research. It was interesting and a very exciting possibility for future treatments.

Kaelyn is Tubeless!

So, the removal of the tube was very simple and quick. She did not even need anesthesia. I though that the docs would want to watch her for a few hours but they just sent us home after we were all done. I didn't feel comfortable leaving Salt Lake so we stayed in the city for a few hours after. She did just fine. No fevers and feeling well. So far so good!

Now we just wait and watch.

Angie

Tube is coming out!

Kaelyn will be going in on Friday, yes this friday, at 9 am to get her biliary drain taken out. I am in a little bit of shock that it is so soon (as if a year wasn't enough time to get used to the idea!!). But this is what we have been waiting for right. We are going to do it as an outpatient surgery and just watch her for any signs of infection at home. Hopefully nothing will present itself and Kaelyn can have a tube free weekend!!!!! She hasn't been without some sort tube sticking out of her body since this all began in May of 2004. I am really nervous and excited. Our ward here in Tooele is going to have a special fast for Kaelyn on Friday and will be attending the 7 pm session at the Salt Lake Temple for her. If anyone would like to join in with the fast or attend the Temple in your area please do. She needs prayers and angels. I will update as I can on friday to let you know how it goes...the tube removal should be uneventful, it will just be the watching for infection part that I am a little unsettle with.

Love to all,

Angie

PS - I just put a few new photos on the flickr account - they include Jacob's birthday and both of the kids first days of school. Kaelyn also has been putting herself to sleep all by herself (First time ever!!!) so we rewarded her with a Dora bed - one of the pictures has her in this bed just loving it!

Tube news....

We finally heard back from the docs in Seattle regarding their opinion on what to do with the biliary drain. Their recommendation is to pull it out and see what happens. Wade and I both feel that trying this before doing a major surgery is a good idea. If all is well in her biliary system after pulling out the tube we will have spared Kaelyn yet another surgery. Tomorrow Kaelyn has a transplant clinic appointment, so I am going to bring all this up with her docs here. I know that they would much rather do the surgery and I want to find out why.

So, I will try and post tomorrow with more info and what the final decision is. I am hoping and praying that Kaelyn will be tubeless sometime soon and with a healthy liver to boot!

Love you all!

Angie