Kaelyn and Jacob

Kaelyn and Jacob, originally uploaded by perryupdate.

I had to put this picture up on the blog. Too cute! I love these kids....I also added a whole bunch of pictures, including Kaelyn's birthday, onto flickr. Just click on the link to the right. Enjoy!

CT Scan Results

Kaelyn's CT Scans went very well last week. There is no evidence of disease! Hip Hip Hurray! The only thing that was a little concerning was that there is some inflammation in her intestines. We are not sure what is causing this. So, at the end of the month we will talk with her liver docs about that. She may have to have another CT scan in 3 months to see if the inflammation as gone down. But over all, we are ecstatic with the results!

Love,
Angie

AFP

So, Kaelyn had labs last week and her AFP is 2.1. Still in the normal range! Yeah! Her liver labs look okay, they are up a little since last month, but really nothing to worry about.

Kaelyn has her 6 month CT scan and Oncology visit on Thursday this week. I will update later on that.

I promise I will get birthday pictures up soon!

love,

Angie

Tubes in Ears and birthday number 5

So, Kaelyn has had multiple ear infections ever since we removed her tonsils in February. So, I took her into the ENT yesterday and they want to place tubes in her ears tomorrow. It is affecting her hearing, which already isn't the best. I guess it is not too involved of a surgery. She should even still be able to continue her swimming lessons that she just started yesterday. Speaking of....I think my little girl is really Ariel the Little Mermaid in disguise! She loves to swim! She really hasn't had much of a chance to be able to swim in her almost 5 years. So it is so fun to watch her in the water!

She also is very excited,Sunday is her 5th birthday. She keeps asking me if she will be as tall as a grown-up when she is five! Seeing how that is in less than a week, and she is only 3 foot 1, I am guessing it's not going to happen! Oh, and this is a funny one, what she really wants for her birthday is a little sister....that one too, is not going to happen in less than a week! Kaelyn is growing up so fast...though she can't see it in the mirror, I can see it in her. What a blessing, our little girl, who was said was not going to make it past 2 is going to be 5 years old. What more can I ask for.

Love,

Angie

Doing great

So, Kaelyn is doing great. We had an AFP drawn on Monday of last week and it is at 2.9. Still wonderfully normal. It's great to know that we have three more months ahead of us with no cancer. Every three months she has an AFP drawn. The days of waiting after it is drawn to find out the results are usually very stressful. As long as it is in the normal range, below 10 or so I can breath for a few months.

Her immunosuppression level is still a little high, so we will keep ratcheting her meds down until we get it at the right level. But we can handle this! Med dosing is easy breezy compared to cancer...

Wade and I just recently celebrated our 11th anniversary (a little early). We actually left the kids for the night with G-ma Young. This is the first time in almost 8 years that we have had an overnight stay with no kids. It was amazing! We went out to Wendover, NV. I know that doesn't sound amazing, but we had a lot of fun. We went on an ATV tour through the mountains there and that was a blast! We got to overlook the Salt Flats where the "Worlds Fastest Indian" was filmed. And where they hold speed week in the summer. We also saw big horned sheep. It was so much fun! We also got to just ride as fast as we could on a huge flat area....I never knew I was a speed demon! So fun.

We also just purchased a little dirt bike for Jacob. He is loving it. Still learning, but really enjoying it. Wade also is getting a dirt bike and they are going to go trail riding in the summer. Our long term plan is to eventually get a four wheeler for Kaelyn and I so we can come a long and be the "pack horse". It should be great fun!

Jacob had a fall the first time he road and split his lip. Yes, he did have a helmet on, but it wasn't fitted properly. We fixed that. I admit I was a little wary of him riding after I saw him come home with a lip the size of a golf ball! But he wanted to jump right back on, which it good...mama worries though!

Love ya all!

Angie