Surprises around the corner...

I can finally post this since Wade has let his co-workers know. We are moving to Utah!! Wade has been looking for a job there for the past two months flying/driving to and from several times. He finally got an offer from the Salt Lake County Clerks Office to maintain and set-up all of their elections equipment. It should be a great job. He starts May 14th. He is going down first so we can wrap things up here with Kaelyn's hearing aids and Jacob can finish school. The kids and I should be there the end of June. I can't believe this is finally happening! Wade and I have been in washington for 10 years - longer than we expected when we first moved here. I get so excited, but also so nervous. I am very scared to leave all of Kaelyn's doctors and nurses. They have been so important in our lives for the past three years it is really hard to say goodbye and trust in new people. I know that once we meet the docs and nurses we will make good relationships too. It is just a very hard thing to do. I will miss them all very much. I also have made some very good friends here that have been an integral part of my sanity. But friends are friends no matter have far apart you are. I am also excited to finally be able to to a part of peoples lives in Utah that we have been missing for the past 10 years. Moms, dads, grandparents, cousins, aunts, uncles, friends......that will be a good thing.

It has been a crazy week. We put our house up on the market on Tuesday. I don't think I have ever been this good of a house keeper....maybe I can carry on some of that to the next house (maybe;) Kaelyn had her biliary drain snap in half this week. She was climbing up some stairs and it got caught under her knee and snap. Luckily all of the internal parts stayed put. So the next day we went into the hospital and had a cholangiogram and tube change. It went well. Then right after that we had her molds made for her hearing aids. She chose some really cute ones. Her molds will be clear with pink sparklies and the behind the ear part is a very cute pink. I hope that she will transition easily into them. I guess we will see. On top of it all, Kaelyn has had a nasty cold and is still on IV antibiotics from her last biliary infection.

We are going to have Kaelyn's birthday part this sunday since grandma and grandpa Perry and Aunt Amanda and Uncle Mike are both moving to Utah next week. It should be fun. She wants Dora everything.


Love to everyone,

Angie

Home

We did get to come home on Friday, yeah! But, she has a cold now. No fun. As long as she doesn't get a fever we will be able to stay out of the hospital, cross your fingers.

On Wednesday Kaelyn get her ear molds made for her hearing aids. Hopefully that will go well. They just squirt some pick goo into her ears. It's soft and cold, so I think she will be all right.

Angie

Still inpatient...

Okay, so on Monday Kaelyn had her drain changed and cholangiogram done. The IR Docs were able to get out a bunch more of the sludge ball and dilated the two strictures (areas of narrowing) in her bile ducts. Things look pretty good in there. She is feeling much better. We are just waiting for two days of negative cultures. We have had one day, so hopefully yesterdays will come back negative and will be able to go home today. Fingers crossed.

Kaelyn was really funny yesterday. Her preschool teacher, Marilyn, came by for a visit and brought her a tiger mask from the zoo. Kaelyn loved it! I have never seen her so aggressive as when she put on the mask! She ran around the whole unit "scaring" all of the nurses, even other parents when they would come out of the rooms she would go right up to them and growl! It was so funny! She wore it for a very long time, even down to the cafeteria and play room. What a hoot!

Anyway, I guess that just shows you how good she is feeling, I think she needs to wear the mask when the docs come by and scare them into letting us go home today! Roar!

Love to all!

Angie

Back in...

On Saturday night Kaelyn spiked a fever, so back in we went. She topped out at 104 degrees. It was no fun. She is feeling much better now after starting IV antibiotics. Right now she is having her drained changed and a cholangiogram. It was a very long day with a grumpy, hungry girl - but she should feel much better with a new, clean drain. She does have positive blood cultures so we will be inpatient for atleast a couple of days.

Angie

In and out, in and out....

Last Friday around 11:30 pm Kaelyn spiked another fever. So into the hospital we went. Of course not much gets done over the weekend at the hospital so we waited until monday. All of her cultures were negative so they let us go home after two days of antibiotics with a cholangiogram and tube change scheduled for April 26th. Well, last night (Thursday) Kaelyn started to not look like she felt very well and acting very cranky. This is all usually a sign that things are heading for a fever. So far so good though...no fever through the night. But I am still leery. I guess we just wait it out. But we are heading for another weekend...that usually means time in the ER and two days spent without any action done....blah. Oh well...

On a different note, we are painting the trim of our house today...fun stuff! It really needs it. We scraped paint and taped the trim yesterday...not so fun stuff. But now it is already to look beautiful! So hopefully we can stay out of the hospital long enough to get this done.

Last wednesday we took Kaelyn in for her ENT appointment. He looked in her ears and of course couldn't see anything because of all of the wax. So he cleaned her ears, which was very tramatic, and everything looks good. She is cleared to get her molds done for her hearing aids. That appointment is scheduled for May 2nd. Then she will be fitted for the hearing aids the end of May. That will be very interesting. She hates things in her ears!

Right now everything is calm in the Perry house...whew...

Love,

Angie