Good News! No sign of infection or rejection taking place in Kaelyn's liver. They think her elevated labs are in result of continued deterioration of the bile ducts. Which in itself is not good either, but is a whole lot better than rejection or infection. Kaelyn and I are back a home now, thank heavens we only had to stay one night in the hospital.
Love to you all.
Angie
Saturday, January 29, 2005
Thursday, January 27, 2005
Liver Biopsy
This week has been a huge whirlwind of emotions and events. On Monday we went into our normal clinic visit and all seemed well. That evening we received a call from the surgeons. They said that Kaelyn's potassium level was very high and they wanted her in for labs the next morning. They also warned us that a high level could cause seizure or black outs and at worst cardiac arrest. Needless to say we did not sleep well that night. Her potassium level was fine, it was just a lab error, but her liver function results had skyrocketed to almost double what they were last week. So, we recieved a call on Wednesday afternoon telling us that Kaelyn needed to come into the hospital with in the week for a liver biopsy to test for infection or a possible rejection episode. That brings us to today - Thursday. We came into Childrens early this morning for an ultrasound - we have not heard official results of that yet, but it looked about the same as previous ultrasounds, some slight blood flow noted into the liver from the hepatic artery but not much. Then it was off to surgery for a biopsy. This in itself is not too invasive, they just a use a hollow needle to exact some tissue from the liver, but Kaelyn was fasting, had no nap and was very cranky afterward. She didn't handle the anestesia well, vomited and also had a bad bleeding episode after taking out her IV. She is finally asleep now, and peaceful. We will be staying the night here at Childrens and will hear the results of the biopsy tomorrow afternoon.
I will place an update tomorrow after we hear the results.
Please keep Kaelyn in your thoughts and prayers. She is so precious and now that she is older and has tasted freedom the past two months she does not want to be here at all. I don't blame her, either do I.
Love to everyone,
Angie
I will place an update tomorrow after we hear the results.
Please keep Kaelyn in your thoughts and prayers. She is so precious and now that she is older and has tasted freedom the past two months she does not want to be here at all. I don't blame her, either do I.
Love to everyone,
Angie
Monday, January 03, 2005
January 3, 2005
I need to apologize for not upkeeping the blog over the month of December. With our move and all of the holiday hustle and bustle we just didn't get our computer up and running until this past weekend.
Over all though it has been a wonderfully uneventful (hospital) month for us. Kaelyn has not had to be admitted to the hospital for almost two months. She is doing so great! Kaelyn herself has not been uneventful though. She has learned to walk!!!!! What a wonderful Christmas present for all of us! She is just toddling around now, getting into anything and everything. It is so cute watching her short little legs shuffle around. What entertainment! She also has been working on a head of hair. It seems to grow some every night! Her eyebrows are dark and very full and her head hair is, I think, going to be a light brown color. She looks so great! She also has surprised all of her physicians. On her last clinic visit Dr. Healey confided in me that he thought she would be having serious problems by now with the bile ducts. He figured she would be having infection and jaundice and be heading for her second transplant by now. But, as far as we can tell at this point she is well. Her labs are stabilizing some, still high but not climbing any higher and her health has been amazingly well. So, for now the plan is to still have her listed but not accept any organ offers until something changes in her health or her labs start to sky rocket upward. That was wonderful news to us! It sure has been a good month. I believe that we have been blessed with the miracle of a little more time. What a blessing!!
Jacob sure has had a great time having us all together too. We all had a marvelous Christmas. I think we all needed the time to be together without the looming threat of hospitalization. It was just wonderful. We also are just loving our new home! It is so great that Adele (Wade's sister) lives just two doors down. The kids are having a great time with their cousins and I love having the company during the day. It is also very comforting knowing that Adele is their to help us when the times get tough. She is wonderful!
I hope all of you had a great Christmas season. We sure love you and I am going to try to keep the site updated more often now that we have our computer up again.
Love to all,
Angie
Jacob and Santa.jpg
Jacob.jpg
Kaelyn.jpg
Over all though it has been a wonderfully uneventful (hospital) month for us. Kaelyn has not had to be admitted to the hospital for almost two months. She is doing so great! Kaelyn herself has not been uneventful though. She has learned to walk!!!!! What a wonderful Christmas present for all of us! She is just toddling around now, getting into anything and everything. It is so cute watching her short little legs shuffle around. What entertainment! She also has been working on a head of hair. It seems to grow some every night! Her eyebrows are dark and very full and her head hair is, I think, going to be a light brown color. She looks so great! She also has surprised all of her physicians. On her last clinic visit Dr. Healey confided in me that he thought she would be having serious problems by now with the bile ducts. He figured she would be having infection and jaundice and be heading for her second transplant by now. But, as far as we can tell at this point she is well. Her labs are stabilizing some, still high but not climbing any higher and her health has been amazingly well. So, for now the plan is to still have her listed but not accept any organ offers until something changes in her health or her labs start to sky rocket upward. That was wonderful news to us! It sure has been a good month. I believe that we have been blessed with the miracle of a little more time. What a blessing!!
Jacob sure has had a great time having us all together too. We all had a marvelous Christmas. I think we all needed the time to be together without the looming threat of hospitalization. It was just wonderful. We also are just loving our new home! It is so great that Adele (Wade's sister) lives just two doors down. The kids are having a great time with their cousins and I love having the company during the day. It is also very comforting knowing that Adele is their to help us when the times get tough. She is wonderful!
I hope all of you had a great Christmas season. We sure love you and I am going to try to keep the site updated more often now that we have our computer up again.
Love to all,
Angie
Jacob and Santa.jpg
Jacob.jpg
Kaelyn.jpg
Wednesday, December 01, 2004
Kaelyn is Re-Listed
Kaelyn was placed back on the Organ waiting list on Monday, November 30. Now we will just wait until a suitable organ comes available.
Kaelyn is finally starting to roll over all by herself! She also has learned how to get herself into a sitting position from being on her back! It is so cute and wonderful to see her finally able to use her body like a little 18 month old should! It has been really fun with her the past few weeks. She feels so good. It kindof makes you wonder why she needs to go through another transplant. But I do know that she will only get sicker and sicker the longer we wait. That is why we want to get the surgery done before she gets to that point.
More good news. This weekend we are moving into our own house! We are moving to Snohomish into Jim and Adele's (Wade's sister) old home. They have just bought a new home two doors down and we will be part owners in their previous home. It will be a good situation. We will be in our own home but still have family really close. Just in time for Christmas!!! Our new address is:
810 21st Pl.
Snohomish, WA 98290
I don't have our phone set up yet, but will post it when we get our new number.
Love to all,
Angie
Kaelyn is finally starting to roll over all by herself! She also has learned how to get herself into a sitting position from being on her back! It is so cute and wonderful to see her finally able to use her body like a little 18 month old should! It has been really fun with her the past few weeks. She feels so good. It kindof makes you wonder why she needs to go through another transplant. But I do know that she will only get sicker and sicker the longer we wait. That is why we want to get the surgery done before she gets to that point.
More good news. This weekend we are moving into our own house! We are moving to Snohomish into Jim and Adele's (Wade's sister) old home. They have just bought a new home two doors down and we will be part owners in their previous home. It will be a good situation. We will be in our own home but still have family really close. Just in time for Christmas!!! Our new address is:
810 21st Pl.
Snohomish, WA 98290
I don't have our phone set up yet, but will post it when we get our new number.
Love to all,
Angie
Saturday, November 27, 2004
Re-Listed
Kaelyn will be relisted on the National Organ Transplant list on Monday, November 29th. Dr. Healey feels that it will be inevitable that Kaelyn will need a second transplant. It is better to get the surgery done while she is well, then to wait until she is sick. I agree with him. It also is better to do the surgery before scar tissue begins to build too much from her previous transplant. Atleast we have time on our side this go around. She is not sick like she was before and her cancer is no longer an issue. So, the surgeons are going to be very picky on what livers get offered to her. So, hopefully we can avoid any further complications with the new liver.
I hope everyone had a great Thanksgiving. We really enjoyed the time with our family and giving thanks for our many blessings. We continue to see God's hand in all of this, Kaelyn's remission from cancer is a miracle in its self.
I hope everyone had a great Thanksgiving. We really enjoyed the time with our family and giving thanks for our many blessings. We continue to see God's hand in all of this, Kaelyn's remission from cancer is a miracle in its self.
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