ER visit...but good news...

Back in the hospital once again. Kaelyn presented a fever late Wednesday night, so off the the ER we went. She does have positive blood cultures so we will be here until atleast Sunday. She went in for a cholangiogram and tube change yesterday. The docs came back with wonderful news. Her biliary system looks amazing! They could find no evidence of sludge or narrowing. They mentioned that if we were not moving out of state they would have considered pulling the tube to see what would happen. But because of our move they wanted to be cautious and leave it in until after we are settle. I was actually very grateful they decided that, because the last thing we need during our move is a major liver event and have no access to see what is going on. Dr. Shaw, our IR doc that does most of her tube changes, mentioned that he called the IR doc in Utah and is very confident in her ability to care for Kaelyn. He filled her in on all of Kaelyn's info and they think that within a month after we are there that they may be able to get rid of the drain! I am very excited! Kaelyn has told me that the first thing she wants to do when she is tubeless and healed is go swimming. She will be a very cute little mermaid! So keep those prayers coming (it would hurt to cross your fingers too!). I think this will be a wonderful summer!

Angie

This is really happening...

I can't believe that this is really happening! We just accepted an offer on our house in Snohomish, WA and have had our offer accepted on a house in Tooele, UT. We are really moving...wow...

Wade is already in Utah. He started his new job on Monday. He has been a busy man. He found us a house that is just "darling" (in my moms words and I agree!), put an offer on it, arranged financing and trying to figure out a new job all in four days. The kids and I miss him so much, but I am so glad that he is preparing the way for us to have a smooth transition. Moving is so hard! But I think it will be well worth the month of separation and work. The kids and I will be moving down on June 16th. I can't wait! We can move into our new home on June 18th. Very exciting. This is technically the first real house that Wade and I have ever bought. And I love it! It really is darling.

Kaelyn gets her hearing aids on Monday. We will see how that goes...She had to have her tube fixed, again, this week. It started leaking, yuk. I think we will make sure she has one more tube change before we go. She also will have CT scans and an AFP drawn on June 6th. That always makes me nervous.

Anyway, this is going to be a very busy 30 days. Love to you all!

Angie

PS - If you would like to see a video of our new house in Tooele click on this link.

Tooele house

Surprises around the corner...

I can finally post this since Wade has let his co-workers know. We are moving to Utah!! Wade has been looking for a job there for the past two months flying/driving to and from several times. He finally got an offer from the Salt Lake County Clerks Office to maintain and set-up all of their elections equipment. It should be a great job. He starts May 14th. He is going down first so we can wrap things up here with Kaelyn's hearing aids and Jacob can finish school. The kids and I should be there the end of June. I can't believe this is finally happening! Wade and I have been in washington for 10 years - longer than we expected when we first moved here. I get so excited, but also so nervous. I am very scared to leave all of Kaelyn's doctors and nurses. They have been so important in our lives for the past three years it is really hard to say goodbye and trust in new people. I know that once we meet the docs and nurses we will make good relationships too. It is just a very hard thing to do. I will miss them all very much. I also have made some very good friends here that have been an integral part of my sanity. But friends are friends no matter have far apart you are. I am also excited to finally be able to to a part of peoples lives in Utah that we have been missing for the past 10 years. Moms, dads, grandparents, cousins, aunts, uncles, friends......that will be a good thing.

It has been a crazy week. We put our house up on the market on Tuesday. I don't think I have ever been this good of a house keeper....maybe I can carry on some of that to the next house (maybe;) Kaelyn had her biliary drain snap in half this week. She was climbing up some stairs and it got caught under her knee and snap. Luckily all of the internal parts stayed put. So the next day we went into the hospital and had a cholangiogram and tube change. It went well. Then right after that we had her molds made for her hearing aids. She chose some really cute ones. Her molds will be clear with pink sparklies and the behind the ear part is a very cute pink. I hope that she will transition easily into them. I guess we will see. On top of it all, Kaelyn has had a nasty cold and is still on IV antibiotics from her last biliary infection.

We are going to have Kaelyn's birthday part this sunday since grandma and grandpa Perry and Aunt Amanda and Uncle Mike are both moving to Utah next week. It should be fun. She wants Dora everything.


Love to everyone,

Angie

Home

We did get to come home on Friday, yeah! But, she has a cold now. No fun. As long as she doesn't get a fever we will be able to stay out of the hospital, cross your fingers.

On Wednesday Kaelyn get her ear molds made for her hearing aids. Hopefully that will go well. They just squirt some pick goo into her ears. It's soft and cold, so I think she will be all right.

Angie

Still inpatient...

Okay, so on Monday Kaelyn had her drain changed and cholangiogram done. The IR Docs were able to get out a bunch more of the sludge ball and dilated the two strictures (areas of narrowing) in her bile ducts. Things look pretty good in there. She is feeling much better. We are just waiting for two days of negative cultures. We have had one day, so hopefully yesterdays will come back negative and will be able to go home today. Fingers crossed.

Kaelyn was really funny yesterday. Her preschool teacher, Marilyn, came by for a visit and brought her a tiger mask from the zoo. Kaelyn loved it! I have never seen her so aggressive as when she put on the mask! She ran around the whole unit "scaring" all of the nurses, even other parents when they would come out of the rooms she would go right up to them and growl! It was so funny! She wore it for a very long time, even down to the cafeteria and play room. What a hoot!

Anyway, I guess that just shows you how good she is feeling, I think she needs to wear the mask when the docs come by and scare them into letting us go home today! Roar!

Love to all!

Angie