Kaelyn woke up at midnight on Saturday with really bad tummy pain. I tried to get her through the night with tylonal, benadryl and zofran (anti-naseau) meds. It sort of worked, she maybe slept three hours. So in the morning I called the hospital and brought her into the er. She had an ultrasound, and it looks unchanged from the last one she had before we left the hospital after transplant. Still some sludge in her common bile duct and some nacrosis in the left portion of the liver. Her bile ducts are still enlarged, but not any bigger than before. So, after about 7 hours in the ER they finally moved her to a room. She had an ultrasound today to complete the picture of her liver. They want to make sure there are no large fluid collections that may be causing discomfort. The plan is to do a cholangiogram on thursday or friday and see if there is any strictures (blockages) in the bile ducts. This may be causing the leak that is in her liver to not have a chance to heal and it in fact may be getting bigger. Though there is no increase in drainage. If there is evidence of strictures they will put in a bile drain. I know that if it is needed then we need to do it, but part of me screams noooooo. I have a feeling that once we get that drain placed that it will be a very long time, if ever, that it will be removed. Dr. Reyes says that it could be simple and short if the stricture is in an anastamosis (place where her duct is connected to the donors). The drain will just decrease the pressure to the leak and allow it to heal. And then they could go in and place a balloon in the stricture and open it up and hopefully take out the drain. I will place my prayers and hope in that scenario. I should know more about her CT scan tomorrow after rounds and I will try to update so you all know what is going on.
She is not having too much pain today and has had a good time playing inthe playroom and running around dazzling all of the nurses. So things are not too bad. So, just pray for her that she will be comfortable and we can figure out what is going on.
Love to all!
Angie
1 comment:
My mind swirls with theories for what else it could have been. She's just now been eating really--maybe it's digestive? Withdrawal?
It is *so* hard to just trust the docs there.
Occam says it was the hot dog. :)
You can tell them I said that. ;)
We'll be praying that the CT scan comes back clean, and they conclusively decide that it was just indigestion compounded with narcotic withdrawal, that they need to take out her ng tube, and just have her on a clear fluids/light food diet like anyone else whose undergone trauma to the gut. (Because y'know, I like know so much more than they do. :P )
Crossing our fingers (and folding our arms!) that rounds tomorrow has good news for you guys.
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