Feeling yucky...

We were transferred yesterday from the ICU to our room in the ICS (Immunocompromised Services), that is a good thing. It is so much better here. Quieter, less hustle, and a bed for a parent. Kaelyn is doing okay. She is still in a bit of pain. She had a really rough night last night. With blood and albumin transfusions, fevers, blood draws, pain and all around discomfort. The surgeon said that this is a very painful procedure, especially when you have a liver surrounded with as much scar tissue as Kaelyn had. It was adhered to the abdominal wall, so he had to cut it free. That in itself is very painful. Today we were minutely able to smooth her pain. That is, it was a little less than the night before.

We drew blood cultures last night because of the fever and the already have come back showing some growth. So she does have some sort of blood infection also. This is not so good news. This could mean that there is a leak somewhere in the liver or intestines. If that is the case, then it could mean more surgery. This was part of our apprehension for doing this procedure. We will see what bacteria does grow out of the blood and go from there.

She also is so hungry and the surgeons don't want her to eat. They have good reason, not wanting the liver to have to produce too much bile at the moment and her gut may not be fully revived after the surgery, but it is so hard for Kaelyn. She doesn't understand why the doctors would make her starve. This part is really hard on me and Wade. We are hard wired to provide basic needs for our children, and that includes feeding them when they are hungry. Maybe tomorrow they will let her eat.

I just want to skip this part and get back to having a healthy, well little girl. On top of it all, I have a silly chemistry final on Monday that just doesn't seem important now at all.

Prayer for comfort from the pain for our girl. She could use the extra blessings.

Love,

Angie